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NRDO News and Events
March 2024 - NRDO Education and Awareness Programme
The NRDO Education and Awareness Programme continued in March.
March 2024 - Joint Action on Integration of ERNs into National Healthcare Systems - JARDIN
JARDIN’s kick-off meeting is scheduled to take place in Brussels from 6 to 8 March 2024.
February 2024 - RCSI Genetics & Paediatric Society Event to celebrate Rare Disease Day
The RCSI presents their first RCSI Genetics & Paediatric Society Event to celebrate Rare Disease Day on 29 February
February 2024 - Rare Disease Clinical Trials Network Conference
Join global experts, researchers and advocates to explore the forefront of rare disease clinical research on 29 February & 1 March
February 2024 - Rare Disease Day 2024
The countdown is now on to the rarest day of the year! 29th February is Rare Disease Day.
February 2024 - I am Number Seventeen
The goal of the campaign is to increase understanding of what it is like to live with a rare disease - and show that rare isn’t always that rare.
February 2024 - Minister for Health announces development of a new National Rare Disease Strategy
The Minister for Health, Stephen Donnelly has announced the development of a new National Rare Disease Strategy for Ireland.
October 2023 - EURORDIS Re-launch the Access Campaign Survey
Survey re-launched to capture treatment access issues for people with rare diseases - Full details at link.
Friday, 22 September 2023 - Rare Ireland Conference - Athlone
A day filled with information and support for rare families and advocates. With information stands and guest speakers - Full details at link.
Friday, 22 September 2023 - The Irish Society of Human Genetics Annual Conference - Galway
The Irish Society of Human Genetics Annual Conference will take place on Friday 22nd September at the Galmont Hotel & Spa, Galway - Full details at link.
August 2023 - The Rare Disease Clinical Trial Network (RDCTN) News
The Rare Disease Clinical Trial Network (RDCTN) is a Health Research Board (HRB) funded clinical trial network that aims to increase the quantity and quality of clinical trials in rare diseases in Ireland, while ensuring that the patient voice is at the centre of all activities - Follow link for full article.
