Rare Disease Publications

Dr Beth Milofskys Rare Disease Thesis

Designing rare disease care pathways in the Republic of Ireland: a co-operative model (biomedcentral.com)

Related Files

Model of Care for Rare Diseases front page preview

Model of Care for Rare Diseases

Format:PDF|File Size:698KB

Model of Care for Transition from Paediatric to Adult Healthcare Providers in Rare Diseases front page preview

Model of Care for Transition from Paediatric to Adult Healthcare Providers in Rare Diseases

Format:PDF|File Size:722KB

Summary - Model of Care for Transition from Paediatric to Adult Healthcare Providers in Rare Diseases front page preview

Summary - Model of Care for Transition from Paediatric to Adult Healthcare Providers in Rare Diseases

Format:PDF|File Size:513KB

Patient summary for transfer to an adult healthcare provider front page preview

Patient summary for transfer to an adult healthcare provider

Format:PDF|File Size:395KB

Guide for planning the transition of young people with a rare disease from paediatric to adult healthcare services front page preview

Guide for planning the transition of young people with a rare disease from paediatric to adult healthcare services

Format:PDF|File Size:283KB

National Rare Disease Plan For Ireland 2014 - 2018 front page preview

National Rare Disease Plan For Ireland 2014 - 2018

Format:PDF|File Size:1.3MB

National Clinical Programme for Rare Diseases Workshop on Clinical Research in Rare Diseases front page preview

National Clinical Programme for Rare Diseases Workshop on Clinical Research in Rare Diseases

Format:PDF|File Size:979KB