Have your Say!
A Rare Disease Consultation for the development of the New Rare Disease Strategy is now open.
The Department of Health wants to hear your views on what areas are the most important to people living with a rare disease and those involved in their care.
The views and opinions collected as part of this consultation will be considered and will be used to inform the development of the new Rare Disease Strategy and the recommendations of the Rare Disease Steering Group.
To participate go to the Public Consultation for the development of the new National Rare Disease Strategy.
This consultation will remain open until 29th July 2024.
