Purpose of the My Story National Patient-Held folder
The My Story folder has been created by the HSE for the purpose of promoting child and family centred communication and coordination of care for children and young people with specific healthcare needs. The sections within the folder are to be completed by parents or guardians, young people themselves and relevant healthcare professionals. Every effort should be made to ensure that information contained in the folder is relevant to the current healthcare and support needs of the child or young person.
How to use the My Story folder
Parents or Guardians and Young People:
- A healthcare professional will provide you with the My Story folder and explain how to use it
- All sections of the folder might not be relevant to you straight away, but may become helpful over time
- Take this folder to all your healthcare appointments, hospital admissions and respite breaks
- Keep all relevant healthcare documents here, safely and in one place
- Review information held in the folder at frequent intervals to ensure it is up to date
- If required, please remind healthcare professionals to fill in the visit or clinic summary (Section 4) at appointments
Healthcare Professionals:
- Review the My Story folder to obtain up to date and relevant information related to this child or young person
- Provide a copy of all specific guidelines and/or care plans for this young or young person, relevant to your area of care, for inclusion in this folder
- Complete the visit/clinic summary sheet (Section 4) at the end of each visit or appointment
- Send a copy of all your reports or letters to the parent/guardian for inclusion in the folder
- Use block capitals at all times
Homecare Nurses or Carers:
- Complete the hand-over summary sheet (Section 10) at the end of each shift
- Use block capitals at all times
The entire My Story folder is available to download and print
For Home and Clinic Printing
These files are for printing the relevant section or page of the My Story folder on a standard home or clinic printer.
The “inside pages” file is useful for quickly locating a specific page you wish to print without having to go through the entire folder.
For Professional Printing
For services who wish have the HSE My Story national patient-held folder for children and young people commercially professionally printed, the relevant files for the My Story exterior cover, section dividers and inside pages are available here.
The HSE has made these documents available for all services to access and utilise for any children and young people who might benefit from a patient held folder.
Information on how to use the My Story folder
